INDEED - The Global Impact of Dementia


The Global Impact of Dementia

What is dementia?

Dementia is a progressive, degenerative brain syndrome that affects memory, thinking, behaviour and emotion. Dementia knows no social, economic, ethnic or geographical boundaries and affects people throughout the world. As dementia progresses individuals affected need care with all aspects of daily life, worldwide families mostly provide this care.

Alzheimer's disease is the most common cause of dementia and accounts for 50-60% of all cases and is caused by abnormal brain tissue changes.

Who does it affect?

Someone in the world develops dementia every 3 seconds. International studies make it clear that dementia occurs in every country of the world. Dementia affects 1 in 20 people over the age of 65 and 1 in 5 over the age of 80. As of 2017, worldwide there are an estimated 50 million people with dementia and this number is expected to rise to 152 million by 2050 (World Health Organization, 2018).

Where do people with dementia live?

For at least the last 15 years, the majority of people with dementia worldwide have been living in developing regions of the world. They account already for over 58% of all cases; by 2050 this proportion will have risen to 68%.

Care arrangements

Research has shown that most people with dementia live in their own homes and are cared for by a female caregiver usually a spouse or daughter and that caring is associated with substantial psychological and financial strain (Int J Geriatric Psychiatry 2004 19 170-177). In contrast to developed countries, more than a quarter of people with dementia in developing countries live in a multigenerational household with their children and grandchildren.

Cost of care

Caregivers have to cut back on paid work or stop work altogether, informal care is often supplemented by formal paid care and people with dementia are relatively heavy consumers of health services. The total estimated worldwide costs of dementia are US$818 billion in 2016, according to ADI's World Alzheimer Reports. By 2018, the global cost of dementia will have surpassed a trillion US dollars. 


What is needed?

1. Recognition of the early symptoms of dementia

Dementia is surrounded by stigma and myth. Many people see the early symptoms of dementia as a normal consequence of ageing and therefore do not come forward for the help and support that is available. Recognising the symptoms of dementia is the first step towards receiving a diagnosis. A diagnosis can help to reduce the anxiety of people with dementia and their family, allow a greater chance to benefit from existing treatments, access resources and information and provide more time to plan for the future.

Ten early symptoms of dementia:

Memory loss
Difficulty in performing everyday tasks
Problems with language
Disorientation to time and place
Poor or decreased judgment
Problems with keeping track of things
Misplacing things
Changes in mood or behaviour
Changes in personality
Loss of initiative


2. Cost effective interventions

These are needed worldwide to provide support for people with dementia and their families to maintain and improve quality of life. Research has shown that there are ways to reduce the stresses of caring:

Information and education empowers people to understand what is happening to them and their loved one and how to cope better.
Support groups provide an opportunity to share experiences and feelings.
Professional counselling has been shown to be effective in improving morale and decreasing feelings of stress.
A break from caring is essential, respite can be achieved informally by arranging for the person with dementia to stay with relatives or friends or formally through services such as day care and short stays in residential units.
Practical help in the home, financial support and a key person to turn to are also useful.

3. Policy provision

Integrated policy and services across health and social care sectors are essential. Reliable and accurate data about the prevalence and impact of dementia in communities is required to inform better decision-making and policy formation to enable appropriate and accessible service development. ADI's World Alzheimer Reportscontains recommendations for service development.


Programme co-funded by European Union funds (ERDF, IPA, ENI)